Monday, April 8, 2013

Autistic children in RI deserve better care

The Health Ministry’s mental health division director Diah Setia Utami said that around 30 percent of autistic children in Indonesia were likely to suffer from psychosis, due to a lack of understanding.

“Autism is not a physical illness and cannot be cured by medicine. Children with autism need frequent therapy as well as moral support from family and the society,” Diah told The Jakarta Post recently. “Unfortunately, most autistic children in the country do not receive proper treatment, because many parents feel ashamed if their children are diagnosed with autism, and society is still discriminatory toward them, which results in many becoming
depressed.”

According to Diah, the lack of knowledge of the symptoms of autism leads to improper and delayed treatment.

“Sometimes, children begin their therapy sessions too late, because a lot of parents think that it’s a good sign that their children stay calm all the time [even though they are actually showing signs of autism],” she added.

Diah suggested that parents of autistic children pay closer attention to their behavior and emotions, as well as helping them to develop communication and social skills at an early stage.

Separately, Health Minister Nafsiah Mboi said that the country saw an increasing number of autistic children every year.

“It is good sign if the number is increasing, because that means more autistic children are being diagnosed,” she said. “We have to embrace these children because they were still often seen as bullying targets, which could harm their psychological condition,” she added.

April is autism awareness month but despite the increasing number of autistic children in the country the Health Ministry still had no reliable data on the actual number of children with autism.

The Health Ministry’s head of intelligence center Eka Viora said the country has not yet conducted a comprehensive survey to find out the actual number of autistic children.

“We are having problems in calculating the number of children diagnosed with autism because the service for them is spread between health facilities and education institutions, which could result in overlapping of data,” Eka said. “Moreover, not all of them receive medication or therapy.”

“We estimated that there are currently around 112,000 children under 19 years old diagnosed with autism in the country,” she added.

Eka said that treatment for children diagnosed with autism could be found at every public hospital and treatment was covered by the government-run community healthcare plan (Jamkesmas).

However, she admitted that areas outside Java lag behind in health and education facilities for children with autism.

“The ministry aims to increase the number of health facilities and to distribute more health workers to reach all of the country’s autistic children. We have come to realize that we need to pay more attention to autistic children,” she said. (
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